The Autoimmune Expedition

Documenting a self-propelled expedition from Vancouver to the summit of Mount Rainier to raise awareness of Systemic Autoimmune Rheumatic Diseases (SARDs)

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We Reached our Fundraising Goal!!

Posted by petertmarshall on October 10, 2013
Posted in: Fundraising, Trip Updates. Leave a comment

I’m really happy to say that the Autoimmune Expedition reached it’s fundraising goal of over $14,411!! 

I had the honour of speaking at the Arthritis Society’s donor appreciation luncheon in Vancouver on October 9th. After my presentation many of the very generous attendees were happy to contribute even more to a cause they have supported for years. It was great to see.

I really appreciate the support I’ve had from everyone who donated or followed the trip, and of course from my team mates and family who supported throughout. Thanks again! It was a great experience and opportunity to support a very worthy cause.

Trip Report – by Pete

Posted by petertmarshall on July 23, 2013
Posted in: Trip Updates. Leave a comment

A little over a week has passed since I got home from the trip. I have slept incredibly well lately and have finally managed to fully recover from my efforts. Now it’s time to write a trip report. This won’t be a typical trip report however. I don’t plan on telling you how tough every step was at 12,000 feet, or how many flat tires we had along the way. I wan’t to talk about the trip highlights and what I will take away from this adventure.

 

First, here’s a short summary of how the events unfolded. On July 3rd I woke up at 5 am to head downtown for a CBC radio interview. It was an early start to what was going to be a long day, but I thought it was worth it to spread the word a little further before departing. After the interview I rushed home and grabbed my gear, then headed out to meet my team in Langley. 8 of us rolled out of Langley at 9 am and headed for the border. My rheumatologist, Dr. Jason Kur, skipped out of the office to join us for the first 30 km of the trip. It was great to have is support. We rode around 100 km on the first day. By the end my butt was sore and my legs ached, but I wasn’t too badly off. Day 3 was the toughest day on the bike for me. It ended up being a really long day. We rode a total of 145 km and most of the last 50 km was really hilly with some super steep climbs. I limped in to the hotel in Eatonville and felt exhausted and a little discouraged. How was I going to get to Rainier and still feel fresh enough to climb the mountain?!? The next day I woke up and just took it one kilometer at a time. Surprising I felt pretty well recovered. I kept on pushing and we made it to Paradise at the base of Mount Rainier (5400 ft elevation gain) by 5 pm. Time to rest and get ready to climb.

After a day of rest we started our ascent of the mountain at 6 am on July 8th. The weather was absolutely perfect so I couldn’t use this as an excuse. We made pretty slow progress with heavy packs but the pace probably helped me conserve energy. After a few hours my brother Bob realized that his fitness level wasn’t up to snuff for the task at hand. He made a wise decision to turn around and head back. I felt bad for him but really appreciated that he came all the way from California to support me on this. We finally made it to Camp Muir at 2 pm and set up camp. At this point Steve and Andrew decided that they didn’t feel up to attempting the summit. We were now a 3 man team. We loaded up on water and food a lay down until midnight. When we woke up AJ put on his ski boots and realized that the damage caused on the way to camp was too much for him to continue. Now it was only Ashley and I. We deliberated and finally decided to “give it a go”. We slowly made our way up the mountain and just kept on putting one foot in front of the other. By 7:30 am we were at the summit. Wow, we actually did it! It wouldn’t sink in for a little while. Now we just had 5000 feet of down climbing and 5000 feet of skiing left. We made it back to the parking lot where we met the rest of our team and I gave my wife a huge hug. I thought about her with every step I took.

The ride home followed more or less the same route as coming down. This was actually mentally and physically one of the hardest parts of the trip. The ride home isn’t as glamorous as reaching the peak, and it was extremely hard with legs that felt like they had been used as punching bags. Again, I just took it one day at a time and managed to maintain the “schedule” and get home in one piece on July 14th. What a trip!

Now here are my thoughts on the highlights of the trip and what I have taken away from it:

Reaching the summit:

Only 50% of people who attempt the summit of Mount Rainier actually make it. Many are turned away due to weather, but most turn back from exhaustion or sickness. Ashley and I climbed past a number of rough looking climbing teams that had called it a day well below the summit. I managed my pace well and never felt too horrible. I just kept on going and actually made it to the top despite my condition. I was as capable as anyone else on the mountain! Getting to the top I proved to myself that I can still do anything. This disease has changed my life, but it hasn’t hindered me.

I have incredible family and friends:

I couldn’t have done this without amazing support from my friends and family. My Mom spent her vacation time driving around with us bringing drinks and snacks and cooking meals at my sister’s house. She also worked tirelessly to help me raise money. My sister let the whole team crash at her house in Seattle for 2 nights. It was so nice to have a shower and fresh laundry. It was also great to have a fan club – my three nieces. When we stayed there on the way home Zoe (3 years old) came up to me out of the blue and said “Pete, you have a lot of friends”. It was super cute. I don’t think of myself as someone with a lot of friends, but I do have a lot of great friends. I stood on the summit with Ashley who I have know since I was 8. Steve and Sarah pulled us along on the bike (awesome cyclists). Andrew and Christine were a great help logistically, took awesome photos, and took part in most of the trip. My brother Bob spent one solid day cycling with us and was the best pace setter I could hope for. And AJ gave the climbing team some confidence just by being there. Then there is Marie… My wife is the best! She supported me all the way. First, she let me go on this crazy trip, then she insisted on being there every step of the way to support. Thanks to everyone!! Having a support network makes all the difference.

Goal setting works:

I have always been a goal setter. It was instilled in me when I was a competitive swimmer. Goal setting helped me get healthy again. When I was in the intensive care unit in 2010 I almost immediately started setting goals for my comeback. It started with small goals like walking around the hospital ward without help, to getting on the stationary bike for 5-10 minutes, to skiing before New Years (less than 6 weeks out of the hospital). One goal I set was to ride the Vancouver-Whistler Gran Fondo ride that year (10 months out of the hospital). I pulled that one off despite some real obstacles. Goal setting helped me immensely on this trip as well. There were several times when I felt like I wouldn’t be able to finish. Instead of fixating on the summit I focused on smaller goals. I would tell myself that I still had energy to get over the next hill, then see how I felt from there. Small goals helped me manage the big and somewhat overwhelming goal of climbing Rainier after cycling 500 km.

Making a small difference:

So far I have raised around $13,000 for the Arthritis Society. I know this is peanuts in the big picture, but it is something. It’s also hard to tell how well I have “raised awareness” or inspired others. I do have one concrete story though… On our way down the mountain from the summit, Ashley hiked passed a woman who was walking on one of the trails on the lower mountain. She asked him if he made it all the way to the top. He said “yes, we were standing on the top at 7:30 this morning”. This woman was impressed, but told him that she could never do anything like that because she was missing a third of her lung. Hearing this Ashley had to tell her about my story and how I managed to get to the top despite only 60% normal lung function. I think she was amazed by this and quickly asked for information about our expedition. Maybe hearing my story inspired her just a little.

Thanks for following and supporting this trip. It’s been fun and I’m really happy that it was successful. What next? Well, I’m not sure if I will plan any big trips like this in the near future, but I do have plans to head off on a week long backcountry hike in the northern Yukon in late August. I will be joined by my younger brother Tom and my Mom.

Summit Account from Ashley

Posted by petertmarshall on July 13, 2013
Posted in: Uncategorized. Leave a comment

We did it! Early Tuesday morning, Peter and I made it to the summit of Mount Rainier at 14,411 feet. Although extremely tired from the two days of climbing, I am so excited and pumped to have helped Peter achieve this goal and follow through with something I doubted I could achieve myself. It was such a special experience and I’m glad I got to share it with my best friend.

The trek started early Monday morning at Paradise at the base of the mountain. We set off on foot at 6AM but were soon on skis to make the climb go faster and use less energy. The goal was to reach Camp Muir (staging point for the summit climb at 10,000 feet) around lunchtime to avoid the afternoon heat. We couldn’t have asked for better weather as it was bluebird and gorgeous the entire time. Our group started with 6 guys and 3 girls who joined us to the first lookout point. The guys continued on from here; however, Bob (Peter’s brother) decided at about 7,500 feet that the climb was going to be a bit much for him at this point and decided to head back. At any other time in his life, Bob would be fit and capable but he’s the father of a 7 month old so his time and energy have been devoted elsewhere of late. I helped Bob down about 1,000 vertical feet to make sure he was at a safe point and then continued on, solo, to catch up with the others at Camp Muir. It was too bad he couldn’t continue but it was the right decision at the right time and one we all were expected to make if we were feeling less than confident in our skill, fitness, or health. I reached the Camp at about 2:00PM and spent the rest of the day relaxing, boiling water, eating, and preparing gear for the summit push which we would begin just after midnight. In the late afternoon, Andrew and Steve also decided they were not feeling up to it as they were feeling the effects of altitude and the climb to Camp Muir. Again, it was unfortunate that they wouldn’t continue on as they had put so much effort into making it this far. Initially, we were supposed to be two teams of three but now were down to just three: AJ, Peter, and me. Camp Muir was in a gorgeous location, looking out at other large peaks, including Mount Adams, Hood, and Saint Helens.

I laid down at about 8PM, knowing that I’d be up again in just a few short hours and was actually able to sleep for a couple. At midnight, we were up with a few other teams ready to make a summit push. A.J. decided at this point that his feet were just not up to the task and he knew he’d have to turn around shortly if he started. So, now we were down to two, Peter and me, and the decision whether to go on as a two person team or not. We thought we should at least try, see how we feel, and decide en route if it was manageable or not. I was glad at this point that we were going to give it a go as I would have been disappointed had we elected to abort the attempt. The two of us set off in the dark, headlamps on, roped together, hoping for the best. It was quite a sight to look up the trail and see groups of little white lights moving slowly up into the darkness. We had to climb at night because during the day the sun heats up the snow and glacier and adds too many dangerous elements to contend with. On one hand, I enjoyed climbing in the dark because I couldn’t see anything and had no idea how high I was or if there was danger around me. All I could focus on was one step at a time. On the other hand, it was pretty scary not knowing where we were headed!

The route was tough as it took us through snow, across glacier, on rocks and scree. There were some parts that really made me nervous, like crossing a 5 foot wide crevasse on a ladder and jumping over some smaller ones. Each time, Peter told me not to look down but of course I did anyway! It was scary to look down into the crevasses and see huge, deep cavernous rooms that could swallow us up if we weren’t focused. For the most part though, the trail was pretty straightforward to follow. The last hour was probably the toughest though as we followed steep switchbacks that seemed to go forever. At this point, because of the altitude, we were moving at a snail’s pace and taking 20-30 steps at a time and then stopping to rest. Every time we came over a new roller, thinking we were closets the top, we looked up to see another huge expanse that we needed to cover. It was discouraging and overwhelming, however, we knew that we could get it done at this point if we just kept plugging along. Finally, we reached the crater at 7AM where we stopped to refuel and rehydrate. From here you could dump your pack and unrope, walk across the crater, and scramble up the last 100 feet to the summit. We were the only ones there when we made it and it was truly a spectacular and special moment. It was incredible to look down on giant mountains below us that looked so small. You could see forever. I felt such a sense of empowerment and accomplishment for getting to the top, but also, I was so proud of my friend Peter, for achieving his goal despite having an extremely compromised lung capacity. It was amazing to which him persevere, without showing any signs of discomfort or agony or breathing disability. In fact, he looked as competent and comfortable as the best climbers we saw on the mountain. Over the course of the entire climb, I’d estimate that about 50% of the people who started the climb to the summit had to turnaround because of illness or lack of fitness – Peter completed this task without a hint of problem. It was impressive and inspiring to witness. I was thrilled, for my own sake, that I also had no issues adapting to the altitude and did not feel too stretched physically, beyond what would be expected.

We didn’t spend too much time at the top as it was cold, windy, and we knew the sun would be affecting the snow in adverse ways. Also, we still had a few hours of down climbing. Each step down was greeted with a fuller breath. Our legs were tired and wobbly but we made sure to move slowly and cautiously as this is when you can make mistakes or lose focus and fall. We returned to camp around 11AM, greeted by the rest of the group, smiles, hugs, and high fives all around. We took about an hour to rest up, refuel, and pack up, before descending the rest of the mountain on skis and foot. It was such a welcome relief to reach the bottom, hug the rest of the group, and say that we did it. It was such a team effort – even though only Peter and I reached the summit, it took the effort and energy of everyone to make it happen. I’m so grateful for the support that everyone contributed and I know that Peter appreciates what everyone did to help make his dream come true.

In total, Peter and I climbed more than 10,000 vertical feet over 21 hours with very little sleep (or experience, in my case). It was grueling and exhausting, easily the most physically challenging and scariest thing I have done in my life. At the same time, it was one of the most rewarding and empowering. I can’t put into words the feeling of standing on top, considering all it took to get there.

After two days of camp food and cliff bars, the Yak burger and momos (traditional Nepalese dumplings) at the Himalayan restaurant in Ashford tasted pretty amazing!

What a great experience – thank you Peter for the opportunity and thanks to everyone else for the support. Now we just have to ride back to Vancouver!

Top of Mount Rainier

Posted by petertmarshall on July 13, 2013
Posted in: Uncategorized. Leave a comment

Top of Mount Rainier

Me at the summit at 14,411 ft after 7 hours of climbing

Made it to Seattle

Posted by petertmarshall on July 5, 2013
Posted in: Trip Updates. Leave a comment

Well, we have pedaled 225 km from Vancouver to Bothell (suburb of Seattle) in two days. It all started in Langley at 9 am on July 3rd. From there we headed south to the Aldergrove border crossing and on to Bellingham. Here we enjoyed a quick sandwich before heading out on a beautiful route along the coast – Chuckanut Drive. I highly recommend this road as a detour from the I5 or as a bike trip. We eventually made it to Bay View State Park across from Anacortes by around 4:30 pm. The night camping was nice but it wasn’t a restful sleep due to the early use of July 4 fireworks.

This morning we woke up early, had breakfast, and got back on the road heading south. After around 35-40 km we joined onto the Centennial Bike Trail, which headed south through Arlington and on to Snohomish. The trail was rand new and meandered through the forest for over 60 km. It was a really enjoyable route. The trail followed an old railroad, which meant it was never really steep. However, from Snohomish things changed. We were met with a number of rolly hills. Not a big deal usually but after almost 100 km on the road and pulling a heavy load… it hurt. After another mechanical issue and a flat tire we finally climbed up to my sister’s house in Bothell. Needless to say, we were really happy to be met with a cold beer and bbq burgers. I think we’ll have a more restful sleep tonight.

So, after 225 km of riding I feel about how I should feel. My butt is sore, my legs are tired, and I’m a little worn out. However, I am happy that my lungs feel great and my joints are fine. Those are good signs. I just need to continue pacing myself well and before I know it we will be at Mount Rainier, hopefully feeling relatively fresh. We shall see…

And so it begins…

Posted by petertmarshall on June 30, 2013
Posted in: Trip Updates. Leave a comment

Less than 3 days until the Autoimmune Expedition begins. I’m really excited to finally get going after 8 months of planning, preparing, and training. Of course, I’m also a little nervous. I wonder how my body will hold up after consecutive days of hard efforts, climbing at altitude, and enduring summer heat. Only one way to find out…

I have loaded my bike, and it’s a little discouraging how heavy it is. Oh well. I will just have to grind away slowly and rest well when I can. I don’t want to end up at the base of Mount Rainier completely burned out. I’ll just keep telling myself “one more pedal, or one more step”. I am excited that I could be standing on the summit of Rainier in just over a week!

My fundraising efforts have been successful so far. It’s amazing how challenging it is to raise money. There are so many worthy causes out there. If I can contribute a little to research I will be happy, but I’m even more focused on simply raising awareness of these rare autoimmune/ arthritis diseases. Little is known about these conditions, but increased awareness will go along way to getting more support.

I hope everyone will stay tuned to this blog during the trip. I will try and update as often as I can throughout the trip. Thanks for all your support and encouragement.

Pete

Kick Off Party Success

Posted by petertmarshall on June 28, 2013
Posted in: Fundraising. Leave a comment

The kick off party on June 26th was a success. There were around 60 people in attendance. Thanks to everyone who came and gave generously to the cause!

Special thanks are in order for my Mom (Jane Marshall) who baked most of the food for the evening, my wife Marie who helped on all fronts, and my friends and trip companions Steve and Sarah who helped at the door. Thanks also to Andrew and Christine, Tyler Norton, and everyone who helped spread the word.

I would also like to thank Mark and Showcase Snowboards who kindly offered to host the party at the shop. They donated the venue, staff time for 3 employees, a Whistler bike park pass for a door prize, and 25% of all clothing sales from the evening ($155). We also had great door prizes from MEC, Cactus Club, ArcTeryx, Rocky Mountain, Steed Cycles, G3, Moja Coffee, Red Truck Brewery, Bridge Brewery, and Xoxolat Chocolaterie. The 50/50 winner also walked away with $245!

A table of door prizes

A table of door prizes

Great venue at Showcase Snowboards

Great venue at Showcase Snowboards

 

Kick Off Party

Posted by petertmarshall on June 20, 2013
Posted in: Fundraising. Leave a comment

The Autoimmune Expedition kick off party is scheduled for Wednesday June 26th.

It will be at the Showcase Snowboard, Skate, and Surf Shop in Vancouver (W. 4th and Burrard Street) from 7-11 pm. Everyone is welcome!!

Tickets are $10 at the door (gets you one free drink). There will be a 50/50 draw, beer from Red Truck Brewery, wine, snacks, music. There will also be great door prizes from a number of generous local businesses (MEC, ArcTeryx, G3, Rocky Mountain, Steed Cycles, Cactus Club, Moja Coffee, Bridge Brewery, etc).

I hope to see everyone there.

PartyPoster2

 

Promo Video

Posted by petertmarshall on May 25, 2013
Posted in: Uncategorized. Leave a comment

Click on the button below to see the newest Autoimmune Expedition promo video. This was my first attempt making a movie and I think it turned out pretty well.

Click here

Click here

Article in BCSR Newsletter

Posted by petertmarshall on May 8, 2013
Posted in: Uncategorized. Leave a comment

My Rheumatologist, Dr. Jason Kur, just posted a note about my trip in the BC Society of Rheumatologists newsletter. It’s great to have his support promoting my cause in the medical community. Thanks Dr. Kur.

BCSR_Newsletter_v2.3 May2013

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